We want to hear your story and learn how you are spending your time at home. Post on any of our social media pages with #IStayHomeForRare and we also welcome you to submit your stories here, and we will share them for you. Send a short video that we can include on our Instagram stories.
 
Your photo or video may be featured on this website and on social media as part of this campaign.
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who do you stay home for?

The people and families featured in this site have all given their direct consent and permission to do so and are not the direct recipients of donated funds. They are however eligible to apply and to be selected through a nondiscriminatory process. 

The information provided in this site is for educational purposes only and is not intended to replace discussions with a healthcare provider. The information in this site does not constitute legal or medical advice of any kind.

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