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Our collective impact matters

Amidst such unknown, we are helping families to maintain a sense of balance and stability even while caring for a child or family member with a life-threatening illness. However, ensuring this requires our immediate action and collective support. Together, we can bring strength and hope to many during this time of shared vulnerability and increased need. No amount of support is insignificant. We believe that small is mighty.

Helping Families with Rare Disease During Coronavirus Epidemic
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Your contributions go directly to helping families in need, fast. With an initial matching contribution of $10,800 committed by Living in the Light we are able to provide immediate assistance and support to those we care about and advocate for. In partnership with CureCMD, a registered 501 (c)(3) non-profit organization. All donations are 100% tax-deductible. U.S. Federal Tax ID: 26-2640975.


If you or your company are interested in becoming a matching donor or corporate sponsor, please contact us directly. Thank you, truly.

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Darian Cure GM1

I stay home for Darian

who lost his therapeutic services

due to the COVID-19 pandemic.


Age 3, Living with GM1

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