who do you stay home for?
#IStayHomeForRare join us in solidarity with those staying home protecting the lives of children, family members, and friends living with rare diseases.
I stay home for
Elvis + Fatima living with Batten disease, whose parents immigrated from Mexico and must continue working
during COVID-19.
We stay home in solidarity with those protecting the lives of children, family members, and friends living with rare diseases during the COVID-19 pandemic.
I Stay Home For Rare™ is a campaign and fund for those standing with us in this cause. Through this new platform, together we are raising awareness and funds to help people in this time of heightened need.
Join us through social media, storytelling, fundraising, and resource sharing.
Advocacy Resiliency
Fundraising + Giving
Solidarity Connection
Support Storytelling
STAY HOME FOR KADEEM
“Rescheduled appointments, no monthly visits, blood shortage, and closed clinics. My medical team has informed me that during the pandemic, the emergency room is the last place to treat a sickle cell crisis.”
— Age 30, living with sickle cell disease
Giving +
Your contributions
help to support families
direct + fast
Partners &
Lead Sponsors
Thank you to all our partner organizations and lead sponsors helping to make this possible.
