Applications are currently closed

August 7, 2020 - For the last four months we have been accepting applications to help families and individuals living with rare disease during COVID-19. However, to sustain other aspects of our work we are currently closing our application process until we are able to secure more funds.

We know that the need for financial assistance has only grown in the months since we started this campaign. To date we have raised $81k for direct financial assistance and we are hoping to get to $100k soon to fund more of our qualified applicants. We are still seeking funding from various sources, but have set our more intensive efforts down at the moment. Thank you to everyone who contributed and applied, Your support has truly made a difference in the lives of 78 families.


We are still working to secure funding for your applications and assuming we can raise the necessary funds​, we will contact you when your grant is processed. We are still planning a next round of funding for August, so stay tuned.


The people and families featured in this site have all given their direct consent and permission to do so and are not the direct recipients of donated funds. They are however eligible to apply and to be selected through a nondiscriminatory process. 

The information provided in this site is for educational purposes only and is not intended to replace discussions with a healthcare provider. The information in this site does not constitute legal or medical advice of any kind.

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